What’s missing in Ballarat?

March 2nd, 2012

Last time I wrote a an entry for the Pinarc blog I was discussing the difficulties faced by parents of children who are still in nappies but too big for standard baby changed tables. I am very pleased to see that the council is in the process of fitting out a new accessible toilet facilitiy which includes an adult sized change table. Great work Ballarat City Council!

So now on to my next crusade: playgrounds.

When I ask the parent group at the Specialist School what they would like to see change in Ballarat, the answer time and time again was “a fully fenced playground”. Many of these parents have children with autism, or other intellectual impairment, who like to run away. These parents would dearly love to be able to take their kids out (including neuro-typical siblings) to a park and not spend the while time chasing and worrying.

My daughter at the Special School is in a wheelchair so I am not very concerned about her running away, but I find it very difficult to stay within sight of her and simulataneously keep an eye on her very nimble little sister who is indeed quite capable of running. The liberty swing always brings a huge smile to my older daughter’s face, but it is unsafe for her little sister to be in the area when she is on it, but I can not adequately supervise her if she is outside the liberty swing enclosure(cage?).

What I would love to have is a place where my girls can play along side eachother, like other siblings get to. It sounds like a reasonable thing to ask but does such a place exist? Well actually yes, it does. Infact, several places like that exist. They are located in Lilydale, Montrose, Syndey, Kew, Bathurst, Dubbo, Glenelg, Ashburton, Brisbane, Lake Macquarie, Queanbeyan and Geelong… and these are just the ones I am aware of! Not only do these parks have accessible play equipment, they are also fully fenced. Some even have a double gate system so little escape artisists can’t just squeeze past as a mum gets her stroller through the gate. Many have barbeque areas, bike racks and toilets all within the fenced area. They have paved pathways in recognition of the fact that you can not push a wheelchair on bark chips or sand (not so easy for prams either). These play spaces are not parks for “disabled people”, they are engaging, fun places for all children and adults. Some even have equipment designed so adults with disabilities can play along side their able kids. These places become tourist destinations, particularly for families and school groups which include kids with disabilities (and these days, that is a large number of school groups!).

So why is Ballarat not on the list of places where such playspaces can be found? For one thing, it seems our council has had a fairly negative attitude about fencing playgrounds, despite the fact that parents of all types of kids would LOVE to have fenced playspaces. For another, council don’t seem to see how such a place would become a tourist attraction.

Ballarat is perfect day tripping distance from Melbourne and there are many, many families that would travel to visit a playspace of such high calibre. Of course, the main issue is the money. A playground such as this would take an investment of probably around a million dollars…
but if Dubbo can do it, and Bathurst… and Lilydale can do it, why can’t we? There are some organisations that work with all levels of government and with corporate entities in order to fund such projects, so it is likely the council will not have to fund it alone.

The council is currently reviewing how Victoria Park is used now and how it could be used in the future. Victoria Park is central, easy to find, has shade, great parking, public transport access, toilet facilities (yes, they would need upgrading). This would be a great chance to provide Ballarat with a fabulous tourist attraction, bring more people into Victoria Park, and, most importantly, make family outdoor recreation a possibility for the many families who currently are unable to safely visit a playspace in Ballarat with all of their children together.

The “Victoria Park Visioning” project is a great chance for us to promote this idea. As it says on the Ballarat City Council website “The project aims to set the direction for the park and will help Council to work closely with local residents and other stakeholders to ensure the best possible future for the park. For more information on Ballarat’s Victoria Park Visioning Project contact Council’s Public Spaces and Environment Team on 53205131.”

Rebecca Paton

Pinarc leading the way in ICT in the not-for-profit sector

March 2nd, 2012
Pinarc Disability Ballarat
Pinarc

[Source: iTaNGO on Thu, 01/03/2012]

CEO Q&A – Marianne Hubbard, Pinarc Disability Support

Pinarc Disability Support is a not-for-profit, multi-service community sector organisation providing support to people with a disability and their families across the Grampians region of Victoria.

What are the key benefits of implementing an Information and Communication Technology (ICT) plan?

Seeing the cost savings in time, reduced travel and the immediate benefit to clients in terms of increased reach and access to specialist services.

What are your top tips for others thinking about establishing an ICT plan, or just getting started?

Everyone has to start somewhere.

  1. Increase awareness and actively educate management and staff around the potential of ICT for the organisation
  2. Set up an ICT Steering Committee
  3. Include ICT in your organisation’s Strategic Plan

With the interest and support of our Leaders Group Pinarc have now come to a point where the language has changed from “we could” or “we should” to “when” and “how”. Our increased focus on ICT means that it is now included in our thinking when we are planning new initiatives.

Implementation of our Strategic Plan will require Managers to spend time supporting staff through ICT changes. As a leadership team we understand the importance of clear and open communication as an essential ingredient in all our work. Our internal communication is well developed with clear pathways for information flow and staff input into decision making.

How are you using technology to enable you to achieve your key strategic directions?

A light bulb moment came for me at one of the iTaNGO workshops when we were discussing ICT planning and in particular linking it to strategic planning.

This, of course, made immediate sense and given that we were in the process of developing our new three year strategic plan I have been able to include it as a clearly defined element. Our plan looks quite different this time around: for each activity identified to meet strategic goals, we are articulating considerations for finance, risk, ICT, infrastructure and profile. This identifies more than just risk in each area as it also captures opportunities. This information will now allow us to complete the iTaNGO ICT plan template.

Central to all decision making, for us to align with our mission, is the question “how does this make a positive difference for people with a disability in our community?”

We are planning to broaden our reach of services across the region and use ICT to both increase access to specialist services in remote areas and provide connection to our multi-disciplinary team for outreach staff. Staff support will be achieved in part through face to face contact but reduction in travel will be achieved by supplementing some clinical supervision and case consultation through ICT.

Why do you use social media?

  • To raise awareness about issues related to disability
  • To promote inclusion through engagement in conversation
  • To deliver our strong and proud messages about acceptance for people with a disability
  • Our community awareness campaign “see me as I am” has received 1,252 views since it was published on YouTube 1 December 2010
  • To influence the continued sustainability of the disability sector

We were already strongly committed to a social media strategy to promote our vision of a fully inclusive community and we are active users of WordPress, Facebook, Twitter and YouTube. I believe in the power to reach the broader community through social media. We plan to develop the opportunity for closed group discussions through a forum and develop more videos for community awareness campaigns going forward, from seeing the success achieved to date having monitored the number of ‘followers’, page visits, video ‘views’ and new blog entries. We had 29,425 visits to our redesigned website from July 2010 – June 2011, which has increased our ability to provide information to clients and families.

 What are the main challenges you’ve come up against with social media?

With very little experience in social media, it has been a very slow process to get staff involved. I know that a number of our younger staff are active social media users outside of work, however, they seem hesitant to submit blogs for work. It seems that everyone at work is very positive about the idea of social media but perhaps it is just one more thing to add to an already very busy workload?

 What are your next steps towards reaching your key strategic directions with the use of technology?

  • We are planning a ‘think tank’ inviting all interested staff to come and discuss what the barriers might be to submitting social media blogs for work, and how we might get more involvement.
  • I have added participation in our social media strategy into two recent advertised position descriptions (my Executive Assistant and Project Officer – Capacity Building)
  • We have created a new Training & Development Manager position and will be undertaking a training needs analysis across the organisation. We have already agreed that the iTaNGO training needs assessment tool will be very helpful to be included with a little modification.

Has iTaNGO helped you?

Yes. I think the iTaNGO Communities of Practice (COPs) are a wonderful idea and I am particularly pleased that there is an opportunity to share knowledge and see how other organisations are using ICT.

Pinarc WebsiteBlogFacebookTwitter

iTaNGO CoPs WebsiteFacebookTwitterLinkedIn

Photo: Provided by Pinarc Disability Support
(on screen)
Marianne Hubbard, CEO – Pinarc Disability Support

Sara Cavanagh, Senior Services Manager – Pinarc Disability Support

An update on NDIS “have your say”

February 24th, 2012

It’s been more than a year since we began campaigning for a National Disability Insurance Scheme that will revolutionise the lives of many Australians.

Now, we want to Make it Real.

As Claire and her family will tell you, living with a disability is hard. Getting the support you need, or simply access to services to help you out can be difficult.

Find out how an NDIS will change their lives here.

Claire’s family isn’t alone. We want you to share your story too.

We want to collect thousands of stories and take them Canberra and tell our parliament it’s time to make the NDIS real now. Sharing your story is easy.

Use your mobile phone or handycam, and take a video that includes the lines “Make it Real” and “I’m counting on an NDIS….” Then upload your video here to share your story.

Embarrassed? Don’t be. Your help is important in making the NDIS real. Check out some Australians who have already shared their story.

If you don’t have a video camera or a mobile phone that lets you record, there is no reason you can’t share your story. Just type up your message and send through some photos.We want to hear how an NDIS will make a difference in your life.

You never know when you or someone you love will need the NDIS.

Many Australians already do.

Yours truly,

John Della Bosca
and the Every Australian Counts Campaign Team
www.everyaustraliancounts.com.au

P.S. We’ve got more politicians talking about the NDIS – the conversation is moving quickly.

Victorian Autism Conference – save the date

February 20th, 2012

Planning is currently underway for the Victorian Autism Conference for 2012, to be held on the 9th and 10th August 2012. As per the previous conference regional partners will live stream the conference so you dont have to travel to Melbourne to hear the amazing guest speakers. Pinarc is pleased to announce that we will again partner with AMAZE to deliver the conference here in Ballarat.

There is an exciting line-up of keynote speakers: world renowned ASD experts Tony Attwood and Carol Gray, and educator Sue Larkey. We are also very pleased to introduce Jonathan Petty, an individual with ASD from New Zealand, who will speak about his experiences of living with ASD. We will also hear from his family about some of the joys and challenges of bringing up a child with autism, and the impacts it can have on the family.

More details will follw in the coming months but be sure to add this exciting event to your calendar.

 

Traineeship opportunities at Pinarc

February 20th, 2012

Pinarc is excited to announce that we are now offering a number of places for Certificate IV Disability traineeships.

Successful applicants will experience the many different programs across Pinarc supporting individuals from 0-65 years of age. 

Be a part of Pinarc’s new initiative and have the chance to experience many aspects of the disability sector as a paid trainee.

Use your energy and passion to gain a qualifi cation to lead the way in individualised support for people with a disability. 

We offer you the opportunity to be a part of practical training that opens doors to a rewarding career. 

You will get real hands on experience, intensive support and the opportunity to work across a number of areas of Pinarc for the duration of your traineeship. 

Based on competency, you will have the opportunity to complete your Certificate IV in six months. 

Check out our website for more information or 

call Narelle on 5329 1354. 

Applications close Wednesday 29th February 2012 

 

Flexible Support is almost here!!

February 10th, 2012

Innovative new program to start.

You are the first to hear that Pinarc will soon be launching a new Flexible Support Program providing one to one and small group support for people with a disability. We understand from many conversations with Pinarc families the need for trusted, highly skilled people to assist in the everyday opportunities for their loved ones that many others take for granted.  Assistance to participate in the community, negotiating public transport, attend events and functions and participate in social and group opportunities are some of the possibilities realised with flexible individual and group support.  The program will match support staff to meet the individual needs and wishes of each person. We believe that our great reputation for well trained staff, fun and engaging recreation and respite programs, assistance with planning will see a great demand for this innovative new service.

As always we will be committed to providing a service that is responsive and flexible without compromising on quality. We believe that you will enjoy the peace of mind in knowing that all our staff are qualified with a Certificate IV in Disability.

So, when is this all happening? Keep a look out in the local newspaper and you will see advertisements for staff to join our casual staff pool over the next few weeks. Following recruitment of staff we will open our doors to accept new enquiries.

We will let you know through this blog, our website and our local newspapers when we are ready to go!  We hope that you join Flexible Support.

In the meantime if you have any questions, please ring our central intake service on 5329 1398 or Kate Toner, Manager Community Access on 5329 1313

 

Erica’s Plan

February 8th, 2012

Heidi’s ambition was for her daughter to live an independent life, as all young people strive for – enabling her to grow into being her own person.

Pinarc Disability Support’s self-directed planning assisted Heidi in meeting these goals; providing Erica with an individualised plan.

 If you would like more information please contact:

Pinarc Disability Support
20 King Street North
Ballarat, Victoria, 3350

9.00-1.00pm  Monday to Friday

Central Intake Service on 5329 1398

Reminder

February 7th, 2012

As many of you are aware from reading the early December Pinarc Blog,  Chris Packer of Chris Packer & Associates, recently walked the Kakoda Trail to raise funds for Pinarc Disability Support.

Pinarc invites you to join us in a presentation celebration where Chris will share his experiences on the walk and some of the Glimpses group (Jenny Noy and hopefully Phillip Garvey) will speak and officially accept the collective donation cheque. An afternoon tea and opportunity to meet the Glimpses representatives will follow.

When:     Monday 20th February 2012

Time:      1:00pm

Where:   Lions Hall, 222 Otway Street Sth., Ballarat

To assist us with catering arrangements, please contact Trish Price on 5329 1351 by Wednesday January 15th  to RVSP.

The contributions will go towards supporting the Glimpses Presenters who visit local schools and organisations to speak about their life experiences. Continuation of this work helps break down barriers and stigma for people with disabilities, building the self esteem of participants and promoting inclusion for the whole community.

 

Positive Behaviour Practices

February 3rd, 2012

Presented by renowned Behavioural Psychologist,

Associate Professor Keith McVilly
 

This session will provide carers, family members and professionals with information to assist in providing effective and ethical support for people with an intellectual disability whose behaviour is challenging.

Wednesday 29 February 2012 10am to 12.30pm. Melton Community Hall,232 High Street, Melton

Morning tea and light lunch provided

Bookings required contact Melton Shire Council Customer Service on 9747 7200

This is a significant opportunity for people who are caring for a person with an intellectual disability whose behaviour is challenging. Professor Keith McVilly, and industry leader on Positive Behaviour Practises, will talk about strategies that support carers and professionals. He will use his extensive knowledge and carers real life experiences to develop practical solutions.

Positive Behaviour Practices looks at the environment and the person to help with the best outcomes. Positive Behavioural Support (PBS) is an empirically validated, function-based approach to eliminate challenging behaviours and replace them with prosocial skills. The use of PBS decreases the need for more intrusive or aversive interventions (i.e., punishment or suspension) and can lead to both systemic as well as individualized change.

 

The fight for independence

February 3rd, 2012

We are parents of twins Luke and Erica who were both born with a disability. After the initial shock we made the decision that we would always ensure that they would enjoy a happy, and as normal life as possible.

As Luke and Erica became older the goal we wished to achieve was that one day they would have the chance to live independently from our family just like other young adults. We made contact with DHS and entered the twins name on the waiting list for permanent accommodation.

As time went by frustration was beginning to set in, as they could not understand why they had to wait for such a long time to become independent. DHS funded us for some weekend programs to allow them more freedom, but this only plugged the discontent for a short period, and did not resolve the underlying problem of a permanent home for the twins. Unfortunately as time went by the twins became more determined to leave home, thus creating an atmosphere of frustration and anger towards us for not being able to meet their desire of independence.

I had met another mum who had a son living in a DHS Community Residential Unit which she was unhappy about because of the age group mix of the clients in the house. We decided that we would work towards creating a home for our children that would be a happy, safe, and allow community access for them, thus enabling them lots of interaction with other people and a chance to have some freedom like other young adults their age. We approached DHS to see if they were interested in helping us to achieve this goal. We were told to create a model for this house, and then the department would look at it.

Over the two year period we faced many rejections by DHS. They constantly responded to us that there was a lack of funds each time we approached the department. Over this period we faced an emotional rollercoaster of frustration, anger tears, depression, to the extent that you wonder whether life has any quality for anyone in your family.

We continued to try to achieve this home for our children by visiting and contacting as many people that might help us; we also kept in regular contact with staff at DHS. Eventually on our last visit to the department they stated that they would look at funding this home for us but we had to produce a model that they thought would be workable. There was no guarantee by DHS how long this process would take to complete and when we would have the end result of a home for the children. Unfortunately as time went by the unhappiness was building up in our home, and frustration and anger was directed at us for not achieving their goal of independent living.

Things changed for us when Erica had enough and took herself to out of our home and ended up living in respite. She was fed up with us telling her it will happen and nothing was forth coming. Erica was now living in respite and became homeless as we had to make the decision that we couldn’t continue with our home situation due to the constant stress and anger that we had been experiencing.

We were at breaking point and felt we were unable to continue this situation of her living at home without some major disaster happening within our family. Erica was in respite for 4 months and her time was running out, in that time we had no communication from DHS about her situation.

We were eventually taken to look at a house for her by Pinarc her case manager in view of it begin a permanent place for her and her brother, however the size and standard of the house were inadequate for her needs, in that she was in a wheelchair. Plus I don’t see why they have to make do with accommodation that is not suitable for their needs, especially as we always strived to create a comfortable home for them. Just because they have a disability their rights to live in a decent environment should not be denied.

Due to the fact that nothing else eventuated with regards to accommodation we decided that our only solution would be to buy a house for the twins and set them up. The Department agreed to fund the cost of full time carers for them, we searched and found the ideal house for them, which we set up to create that friendly home environment that had been our goal.

The twins are now living independently from us with great success and as they have both matured in different areas, the anger and frustration that they had been feeling has dissipated. They are both enjoying a great social interaction with their carers and we are trying to organize more outings into the community for them, thus to continue to broaden their experiences.

Since this move has occurred we have once again been able to forge a relationship with our children as parents and not just as worn out carers. It is great to be a parent again.

Heidi